Thursday, October 1, 2015

Thursday

Good Morning! Just a quick update on our sweet girl. We are in the same boat as last week, waiting for her body to clear the medicine so that we can head home! The great news is that her number after 24-hours is already 3.2. Last week at this time it was 9.7 - so she is doing great. She experienced some nausea last night but distracted herself with a Netflix movie, and is getting some extra sleep this morning. They will recheck her level around 8 tonight and if it's close, again at 8 tomorrow morning. We are preparing for a Saturday discharge just to avoid any disappointment. 



I chose this quote today because that's pretty much where we are. This week will mark the end of the first "block" of treatment but next week starts the next one. One day at a time, one foot in front of the other. Thank you to the friends who have taken time to remind me about all the things to be grateful for. Today, I'm grateful for the cinnamon rolls I brought for the nurses that Madeline wanted to eat this morning. Sorry nurses, maybe you will get some next time! 

Ben turns 14 today. I was so worried about how all of this would impact his life and I just can't believe how in stride he has taken all of it. He has quickly become the glue that holds us all together and a lot of the time is the one that reminds us all to be normal. I am so proud of him and so happy to see he and Madeline so close. He is truly #madelinestrong. 

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