Saturday, April 6, 2019

4/6 Madeline Update


I apologize for not updating in so long but everything is okay. The plan is still for Madeline to have one more 5-day chemo.  This should have started last week but her blood work shows that her body is still recovering from the chemo she had a few weeks ago. We tried again this past Thursday with the same result - still too low to start chemo.  So...we will see where she is at her appointment this Thursday. I did remember, in the middle of the night, that at the very beginning of all of this one of the doctors said the protocol would be 2 rounds of chemo, surgery, and then 1-2 rounds of chemo post-surgery. So I guess what is happening is not all that unexpected. The doctor that we saw on Thursday even casually mentioned that perhaps if her body continues to recover so slowly that he might recommend 3-4 days of chemo rather than 5 days. I will update again once we know more on Thursday.

The other good news is that she is feeling good, and each day seems more independent even with the annoying crutches and knee brace. She is able to bend her knee quite a bit, but she still doesn't have feeling in her ankle and foot which is holding her back from walking and putting full weight on her leg.  I know she is so tired of being home and I can only imagine how slowly the days must go by for her. She is really wanting to get back to school and as this last cycle keeps getting put off, I am sure she is well aware that it is pushing back the timeline of returning to school as well.

As always we are so grateful to everyone for keeping her and our family in their prayers. 






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